Well what an awesome experience. We got to the Mayo Clinic this morning at 8:30. We went to the 16th floor of the Mayo Building and went to check in. They told us that we needed to go down to the Business office and fill out some paperwork (even though we did all the pre-registrations on the Internet and through the mail.) After going downstairs, all 16 floors of it, they told us that everything was ok and that we could go back up stairs, all 16 floors of it, and start our round of appointments. We met with the main Doctor that will be overseeing Makayla's treatment. Her name is Siobhan Pittock, she is from Kildare, Ireland. After seeing her and hearing that beautiful Irish broag, I realized the Lord has really blessed us and had a hand in selecting the right doctor. HE HE HE.... She was very thorough in her assessment of Makayla. She decided she needed to have blood work, a MRI, an echo, and an ultrasound of her belly. After seeing her we went down to lunch and tried to get into the Ronald McDonald House. They were already full so we had to stay somewhere else. After that we went back up to the 16th floor to the allergist. She made Makaylas' whole day by telling her she could have macaroni and cheese and pizza. Come to find out we have been trying so had to keep her away from dairy for no reason. They said she is not allergic to dairy products just lactose intolerant. Also, we found out that her doctor at Children's Mercy didn't have any idea what she was doing. (This is not a big surprise to us.)
We then checked into our 10x10 cell. All we can say is that at least it cheap and warm.(seeing the temperature outside is a whopping 7 degrees.) Guess what Makayla had for dinner!! Some of you probably know her well enough to know her favorite meal eve is macaroni and cheese. (Which she hasn't had in almost a year. So of course she had this with extra cheese!
We are now in the room again trying to calm down enough to sleep. Mom is happy because they gave us a week long schedule and knowing her controlling issues she needed to have a list of everything. With where we are supposed to be and what time. We get a new one after every appointment with the new tests, times and places. This is helping her feel in control of the situation.
The schedule tomorrow starts pretty early. At 7 we meet with the business office. At 8 she has fasting labs and it goes on after that all day until they are done with us. today that was about 4:30. Hopefully we are keeping you posted like we said we would. If you have any questions let us know. Thank you for your comments. Good night
5 comments:
I am glad that everything is going well. Love the new layout BTW
Devon
I've been waiting all day to hear about this! I'm so so so happy to hear that she can have dairy! Can't wait to hear how tomorrow goes. Kiss Makayla for me.
How neat that your doctor is from Ireland!! I'm so glad things are going so well!! I have been meaning to mention this to you, just to get it off of my mind: I was studying for school and was reading about worms and parasites. Have the doctors considered this as a possibility for any of the problems? I think it could be a possibility. Not the Whole Problem, but a contributing factor. Don't feel bad that I'd consider it, you'd be surprised how many people have worms and don't know it. But we won't go there:) Just thought you might want to mention it to the docs!!
I am so glad that you are there and safe! My prayers are with you, Makayla, and the doctors treating her. Love ya'll!
I am so glad you are kepping a blog. makes me feel like I am there with you. Please keep us posted on EVERYTHING!!!!
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