Well, Today we caught the bus to the hospital at about 7:30 this morning to start our day. The first person we saw was Dr. Harbeck-Weber in the Dept. of Psychiatry and Psychology. She was nice. We talked all together after that just Mike and I and then just Makayla. It was nice to talk to someone who understands the situation we are in. I think it also helped Makayla to be able to tell her real feelings without having to worry how we are going to react. Even as supportive as I feel we are she still is afraid that we will be upset with her for some of the way she feels. It's amazing how that insecurity can creep in so easily. Anyway, That was really nice and we learned a lot about ourselves.
After that we walked through the subway (the subway is so cool. We can walk from one building to the next through a series of halls under all of the huge buildings. It makes it so we don't have to go out in the 7 degree weather. Which is nice) over to The Rochester Methodist Hospital for a MRI. The MRI didn't go so well in fact we didn't get it done. Makayla was to afraid of the IV and got herself so worked up that she couldn't have layed still long enough. Makayla says " it was weird when they numbed her hand." We rescheduled for Friday. Then we will do a sedated MRI and put the IV in while she is asleep and leave it in after she wakes up for any other tests. I think this will be better anyway. Then we can limit the trauma. Thank you Joe for being a stand in for Aunt Shannie while she was in school.
We went back over to the main building to see the GI Doctor. Dr. Ibrahim went through our file with us to try and get us all on the same page. We all agree that our other GI doctor did not know what she was doing!! We are going to go a different direction. I hope that this will help us!
It was nice the Lion Club put together dinner tonight. We went down to the meeting hall and had dinner. We went into the game room after dinner and played Guitar Hero and Pinball. Now it is time for bed so we can be there again bight and early in the morning. We love you!! Good night.
9 comments:
Good Idea to leave the IV in. Less needles and poking!! Hopefully that goes well. Glad things seem to be moving along. How long will you be there? Good Luck! Love Ya! BTW: Any clear diagnosises yet, other then the headaches?
Ditto with Lena! I freak out at IV's too :)
I don't blame Makayla, that's scary for an adult let alone a child. It will be good that she can just sleep through it.
Wow, what a brave little girl she is. I hope that the MRI can give some needed answers. I am sorry she went through having terrible doc's that didn't know what they were doing. What a pain, not to mention more trauma then she needed. I know that Heavenly Father gave Makayla you for a mother for a reason. You of all people can help her through whatever life throws her way. love you guys so much! You better ad Joy and I to your blog list or we might get our feelings hurt! Just kidding. Night!
Wow - you are keeping busy and it sounds like they are really covering everything from head to toe. I hope that there are some answers soon and that you and Makayla can move forward. Lots of love to your family!
I'm sorry you had a bad time with the IV. We will pray that plan B works out better. Garner will call her tonight sometime. Love, Stephanie
We'll be at least til Monday. We have three appointments scheduled for Monday. And no clear diagnosis yet, but we are getting closer.
Hi!!! This is Joseph, your son. I miss you so much. I learned a new dumb way to do multipication. It is really complicated like the one to do with addition. Only harder. I love you so much. Noah talks in his sleep really bad and it scared me really bad the first night. :) Today it was 65 degrees today, we didn't have to wear jackets at recess. During lunch I got to have a picnic with Ariah:( and Ms. Baker. I miss you again, talk to you tomarrow.
Your son forever
PS miss you right now.
Joseph,
Our Son, We love and miss you so much!!! We wish you could have come up with us, but you would have been bored out of your mind. All we do is run around from appointment to appointment. Then go eat and then sleep. NOT FUN AT ALL!!! Plus you would have missed too much school. But we do think about you all the time. We know you are in good hands with Grandma and Grandpa, and the Youngs. We miss you and will see you next week.
Love Mom, Dad, and Makayla
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